They're called "rare diseases." The term suggests they affect a handful of individuals, isolated cases, and medical exceptions. However, this impression is misleading. In France, more than 3 million people are affected by a rare disease. Worldwide, more than 300...
On August 12, 2025, Emmanuel Macron officially promulgated the Duplomb Law. This agricultural law deeply divided public opinion and the political class. Initiated by Senator Laurent Duplomb and adopted in early July, it was partially censored by the Constitutional...
PlayGreen For Environment (PFE) supports research into Sanfilippo disease, one of the 7000 rare diseases know today (other sources put the figure at 8000). Of genetic origin, Sanfillipo seriously affects the development of children. Through its fundraising campaign,...
Rare diseases affect more than 3 million people in France today. Behind every child, teenager, or adult affected, there is almost always a loved one who watches over them, cares for them, supports them, and organizes their lives. These family caregivers—parents,...
Lysosomal diseases are among the least known rare diseases to the general public, yet they affect thousands of families around the world. In France, more than 3,000 cases have been recorded according to the association Vaincre les maladies lysosomales (Defeating...
On August 5, 2025, the UN opened a series of negotiations in Geneva in an attempt to adopt a global treaty against plastic pollution. The stakes are immense: plastic not only pollutes the environment, it accumulates in our bodies, kills biodiversity, and exacerbates climate change.
Why is this a problem? Because we are all affected, and recycling alone will not be enough to stop the tidal wave if production does not slow down.
Sanfilippo syndrome, also known as Mucopolysaccharidosis Type III (MPS III), is a rare genetic disorder that affects the brain. It causes a progressive decline in mental and physical abilities, leading to a loss of cognitive and motor functions. Symptoms typically...