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Why are rare diseases struggling to Mobilize funds ?

PlayGreen For Environment (PFE) supports research into Sanfilippo disease, one of the 7000 rare diseases know today (other sources put the figure at 8000). Of genetic origin, Sanfillipo seriously affects the development of children. Through its fundraising campaign,...

Rare diseases: the harsh reality for caregivers

Rare diseases affect more than 3 million people in France today. Behind every child, teenager, or adult affected, there is almost always a loved one who watches over them, cares for them, supports them, and organizes their lives. These family caregivers—parents,...